jennifer.
Our inspiration. We were inspired by our older sister Jennifer who is 45 years old and has Rett Syndrome. Rett Syndrome took away her ability to talk, walk independently, use her hands effectively and causes her a lot of discomfort and pain. We would all like to find a cure to make sure other little girls don't have to live this difficult life. All the funds we raise go to the International Rett Syndrome Foundation.
Rett syndrome is a neurodevelopmenal disorder that affects girls almost exclusively. It is characterized by normal early growth and development followed by a slowing of development, loss of purposeful use of the hands, distinctive hand movements, slowed brain growth, problems with walking, seizures, and intellectual disability.
International Rett Syndrome Foundation is the world’s leading private funder of basic, translational and clinical Rett syndrome research, funding over $33M in research grants and programs to date. International Rett Syndrome Foundation has earned Charity Navigator’s most prestigious 4 star rating.